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New EPTRI newsletter is out!

We are pleased to launch our March newsletter. In 2022 we will continue to advance paediatric research initiatives. We have several exciting news: our podcast that will present all EPTRI’s activities and opportunities, our new website and Twitter account, new...

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Is Italy’s new law on rare diseases a starting or end point?

After more than 3 years of discussion, the first Italian law on rare diseases has been approved and came into force on 12 December 2021 (Law 10.11.2021 no. 175 - "Provisions for the treatment of rare diseases and for the support of research and production of orphan...

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