EPTRI POSITION NOTE: Revision of the Medical Device and In vitro Diagnostic Medical Device Regulations: Addressing the Specific Needs of Children and Young Patients EPTRI has published a position note on the ongoing revision of the Medical Device Regulation (MDR) and...
News
EPTRI calls for children’s health to be built into the future of European Partnerships
EPTRI has submitted its contribution to the European Commission’s public consultation on the Single Basic Act for Joint Undertakings and the thematic priorities of the European Partnerships portfolio in Horizon Europe 2028-2034. The submission, dated 16 October 2026,...
EPTRI to present the Paediatric Node concept at the EOSC Symposium 2026
We are proud to announce that EPTRI, through Dr. Rafał Bartczuk, will be present at the EOSC Symposium 2026: Connecting users, data, and services, at Palazzo dei Congressi, Florence on 14–16 October. Rafał Bartczuk will be delivering the lightning talk:...
Young patient experts help shape the future of paediatric medical devices at TEDDY General Assembly and Scientific Meeting 2026
As coordinator of the OrphaDev4Kids project, EPTRI took part in the OrphaDev4Kids Patient Expert Committee (PEC) parallel session part of the TEDDY General Assembly and Scientific Meeting 2026 held in 18–20 September, organised by the TEDDY European Network of...
Building stronger collaborations to advance translational paediatric research – Inclusion of Children’s Memorial Health Institute, Polish node EPTRI on the Polish Roadmap for Research Infrastructures
We are happy to announce the inclusion of the Centre for Paediatric Translational Research of the Children’s Memorial Health Institute in Warsaw, an EPTRI founding member, in the Polish Roadmap for Research Infrastructures, as of this August. The announcement was...
EPTRI brings together researchers, clinicians, regulators and industry in Warsaw to discuss the future of paediatric research
EPTRI held its 2026 General Assembly and Scientific Meeting on 28-29 July at the premises of the Children's Memorial Health Institute (CMHI) in Warsaw, an EPTRI member institution. Over two days, the meeting brought together researchers, clinicians, regulators,...
EPTRI calls for children’s health to be a strategic priority in the EU Biotech Act
EPTRI has submitted its feedback to the European Commission’s proposal for the EU Biotech Act. Its message is that paediatric research should be recognised as a strategic component of European biotechnology policy. EPTRI supports the proposed Biotech Act as an...
ERDERA’s Clinical Trial Call to advance early-phase clinical trials for rare diseases
EPTRI is pleased to share a new funding opportunity from ERDERA – the European Rare Diseases Research Alliance supporting multinational early-phase clinical trials in rare diseases. EPTRI encourages its community to explore this call and is available to support...
Advancing development of wearable monitoring technology for children with rare congenital heart diseases
Children affected by cyanotic congenital heart disease (CCHD) often require lifelong monitoring due to the risk of sudden clinical deterioration and serious complications. However, continuous monitoring outside hospital settings remains challenging, creating a...
EPTRI Paediatric Research Needs Survey
We are happy to announce the launch of EPTRI's Paediatric Research Needs Survey. This initiative is aimed at collecting insights from key stakeholders across the paediatric research and innovation ecosystem. The purpose of this survey is to better understand: current...