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We are pleased to launch our March newsletter. In 2022 we will continue to advance paediatric research initiatives. We have several exciting news: our podcast that will present all EPTRI’s activities and opportunities, our new website and Twitter account, new...
1) XVI European Patients’ Rights Day 2022. The "Conference on the Future of a Healthy Europe: Taking part in the decision-making process on health priorities” will be held on April 20th–21st 2022 from 14:30 to 16:00 CEST. The aim is to provide a multi-stakeholder...
EPTRI in collaboration with EJP RD is organizing this workshop on 4th-5th July 2022 in Bari, Italy. The course aimed at facilitating discussion and exchange of knowledge on the M&S methodologies as well as innovative/promising strategies for facing complex...
EPTRI would like to thank all speakers and partners for coming together to make this virtual event happen. Sessions are now available on-demand and can be watched via the following link that will give you access to the recordings of the live sessions. Please...
The Pharmaceutics journal dedicated this special issue to highlight this important event that was organized by EPTRI last December online. During this event 10 exciting presentations to sum up the activities carried out so far and the short and long-term ambitions and...
The 9th Congress of the European Academy of Paediatric Societies (EAPS) that will be held between October 7th-11th, 2022, in Barcelona, Spain. The Congress, which is organized by three European societies: the European Academy of Paediatrics (EAP), the European...
This meeting organized by the European Alliance for Transformative Therapies (TRANSFORM) MEP Interest Group, from which EPTRI is a member. It will be held online on Thursday, March 31st, 2022 from 15:00 to 17:00 (CET). Advanced Therapy Medicinal Products (ATMPs)...
In the context of EJP RD’s ERN Workshops, the “Translational research on bone impairment in rare diseases” workshop aimed at sharing updates on this important topic by bringing together experts and trainees to facilitate collaborations. It is being organized...
The course has been organized in collaboration with EPTRI and will be held in presence on April 28th-29th 2022 at the CNR Research Area of Bari, Italy. The workshop is designed to enable the attendees to apply metabolomics in a research-based context . Experimental...
After more than 3 years of discussion, the first Italian law on rare diseases has been approved and came into force on 12 December 2021 (Law 10.11.2021 no. 175 - "Provisions for the treatment of rare diseases and for the support of research and production of orphan...