The course has been organized in collaboration with EPTRI and will be held in presence on April 28th-29th 2022 at the CNR Research Area of Bari, Italy. The workshop is designed to enable the attendees to apply metabolomics in a research-based context . Experimental...
News
Is Italy’s new law on rare diseases a starting or end point?
After more than 3 years of discussion, the first Italian law on rare diseases has been approved and came into force on 12 December 2021 (Law 10.11.2021 no. 175 - "Provisions for the treatment of rare diseases and for the support of research and production of orphan...
EPTRI Podcast series
We are excited to present the first of a series of podcasts aimed at presenting EPTRI activities and opportunities. In this first podcast, Donato Bonifazi, CVBF CEO and EPTRI coordinator, gives some insights on EPTRI’s activities to boost the paediatric research...
Manifesto for EU COVID-19 Research has been extended until January 1ST 2023
This voluntary initiative, launched in July 2020, remains highly relevant as the world is still fighting against the COVID-19 pandemic. The importance of voluntary licensing mechanisms in the fight against COVID-19 has been recently reiterated by the European...
EPTRI Article: MD Development for children and young people: Reviewing the Challenges and Opportunities
EPTRI Article: MD Development for children and young people: Reviewing the Challenges and Opportunities The Article "Medical Device Development for Children and Young People—Reviewing the Challenges and Opportunities" has been published in Pharmaceutics as part of the...
EPTRI has entered in the Italian Roadmap for Research Infrastructures
On 20 October 2021, the Decree of the Italian Minister of University and Research adopting the National Research Infrastructure Plan (PNIR) 2021-2027 as an integral part of the National Research Program 2021-2027 (PNR) was published. The European Paediatric...
1st International Conference on Rare Diseases and Paediatric Research
The 1st International Conference on Rare Diseases and Paediatric Research will be held for the first time virtually on 18-19 November 2021! The Conference is organised by 95, Rare Alliance Greece together with Consorzio per Valutazioni Biologiche e Farmacologiche...
SEMMELWEIS SYMPOSIUM, November 16-18, 2021, Budapest, Hungary
The EPTRI Coordinator, Dr. Donato Bonifazi, will participate in the meeting having a presentation entitled: ‘European Paediatric Translational Research Infrastructure: contribution to a new frontier in paediatrics’. Semmelweis Symposium 2021 is one of the most...
European Biobank Week, November 8-10, 2021
The EBW 2021 will be held virtually from November 8-10. This year’s congress theme is “Biobanking for our Future – Opportunities Unlocked”. EPTRI will be represented by Prof. Constantinos Deltas, University of Cyprus, whose poster "A Biobank is growing in Cyprus" has...
Online meeting: ‘How to Optimize Cross-border Cooperation to Support Equitable Access to Advanced Therapies?’
EPTRI is pleased to invite you to participate in the online meeting on ‘How to Optimize Crossorder Cooperation to Support Equitable Access to Advanced Therapies?’ organised by the European Alliance for Transformative Therapies (TRANSFORM) MEP Interest Group on...