EPTRI in collaboration with EJP RD is organizing this workshop on 4th-5th July 2022 in Bari, Italy. The course aimed at facilitating discussion and exchange of knowledge on the M&S methodologies as well as innovative/promising strategies for facing complex...
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1st International Conference on Rare Diseases and Paediatric Research
EPTRI would like to thank all speakers and partners for coming together to make this virtual event happen. Sessions are now available on-demand and can be watched via the following link that will give you access to the recordings of the live sessions. Please...
Special Issue “Scientific Highlights in the First European Paediatric Translational Research Infrastructure (EPTRI) Open Meeting”
The Pharmaceutics journal dedicated this special issue to highlight this important event that was organized by EPTRI last December online. During this event 10 exciting presentations to sum up the activities carried out so far and the short and long-term ambitions and...
9th Congress of the EAPS: “Shaping the Future of Child Health”
The 9th Congress of the European Academy of Paediatric Societies (EAPS) that will be held between October 7th-11th, 2022, in Barcelona, Spain. The Congress, which is organized by three European societies: the European Academy of Paediatrics (EAP), the European...
TRANSFORM MEP Interest Group meeting: “Mind the Gap! How to Pave the Way to Access to Authorized ATMPs for Patients in Europe?”
This meeting organized by the European Alliance for Transformative Therapies (TRANSFORM) MEP Interest Group, from which EPTRI is a member. It will be held online on Thursday, March 31st, 2022 from 15:00 to 17:00 (CET). Advanced Therapy Medicinal Products (ATMPs)...
ERN Workshop: Translational research on bone impairment in rare diseases
In the context of EJP RD’s ERN Workshops, the “Translational research on bone impairment in rare diseases” workshop aimed at sharing updates on this important topic by bringing together experts and trainees to facilitate collaborations. It is being organized...
ELIXIR-IT workshop on Metabolomics and Integrative omics: from data production to analysis
The course has been organized in collaboration with EPTRI and will be held in presence on April 28th-29th 2022 at the CNR Research Area of Bari, Italy. The workshop is designed to enable the attendees to apply metabolomics in a research-based context . Experimental...
Is Italy’s new law on rare diseases a starting or end point?
After more than 3 years of discussion, the first Italian law on rare diseases has been approved and came into force on 12 December 2021 (Law 10.11.2021 no. 175 - "Provisions for the treatment of rare diseases and for the support of research and production of orphan...
EPTRI Podcast series
We are excited to present the first of a series of podcasts aimed at presenting EPTRI activities and opportunities. In this first podcast, Donato Bonifazi, CVBF CEO and EPTRI coordinator, gives some insights on EPTRI’s activities to boost the paediatric research...
Manifesto for EU COVID-19 Research has been extended until January 1ST 2023
This voluntary initiative, launched in July 2020, remains highly relevant as the world is still fighting against the COVID-19 pandemic. The importance of voluntary licensing mechanisms in the fight against COVID-19 has been recently reiterated by the European...