This meeting organized by the European Alliance for Transformative Therapies (TRANSFORM) MEP Interest Group, from which EPTRI is a member. It will be held online on Thursday, March 31st, 2022 from 15:00 to 17:00 (CET). Advanced Therapy Medicinal Products (ATMPs)...
In the context of EJP RD’s ERN Workshops, the “Translational research on bone impairment in rare diseases” workshop aimed at sharing updates on this important topic by bringing together experts and trainees to facilitate collaborations. It is being organized...
The course has been organized in collaboration with EPTRI and will be held in presence on April 28th-29th 2022 at the CNR Research Area of Bari, Italy. The workshop is designed to enable the attendees to apply metabolomics in a research-based context . Experimental...
After more than 3 years of discussion, the first Italian law on rare diseases has been approved and came into force on 12 December 2021 (Law 10.11.2021 no. 175 - "Provisions for the treatment of rare diseases and for the support of research and production of orphan...
We are excited to present the first of a series of podcasts aimed at presenting EPTRI activities and opportunities. In this first podcast, Donato Bonifazi, CVBF CEO and EPTRI coordinator, gives some insights on EPTRI’s activities to boost the paediatric research...
This voluntary initiative, launched in July 2020, remains highly relevant as the world is still fighting against the COVID-19 pandemic. The importance of voluntary licensing mechanisms in the fight against COVID-19 has been recently reiterated by the European...
EPTRI Article: MD Development for children and young people: Reviewing the Challenges and Opportunities The Article "Medical Device Development for Children and Young People—Reviewing the Challenges and Opportunities" has been published in Pharmaceutics as part of the...
On 20 October 2021, the Decree of the Italian Minister of University and Research adopting the National Research Infrastructure Plan (PNIR) 2021-2027 as an integral part of the National Research Program 2021-2027 (PNR) was published. The European Paediatric...
The 1st International Conference on Rare Diseases and Paediatric Research will be held for the first time virtually on 18-19 November 2021! The Conference is organised by 95, Rare Alliance Greece together with Consorzio per Valutazioni Biologiche e Farmacologiche...
The EPTRI Coordinator, Dr. Donato Bonifazi, will participate in the meeting having a presentation entitled: ‘European Paediatric Translational Research Infrastructure: contribution to a new frontier in paediatrics’. Semmelweis Symposium 2021 is one of the most...