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The largest and most established orphan drug & rare disease meeting – The World Orphan Drug Congress – will be held on 27 – 29 October, at RAI Congress Centre in Amsterdam. EPTRI will present a poster during the Congress to showcase EPTRI Thematic Research...
On 19 March, the Committee on the Environment, Public Health and Food Safety (ENVI), as the committee responsible for the procedure, adopted its position on the new Directive and Regulation on medicinal products for human use. MEPs agreed on a number of...
Today we have with us Viviana Giannuzzi, coordinator of the research department at Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus, ethical and regulatory expert in EU and national research projects, member of the Paediatric Committee (PDCO) at the EMA. ...
EPTRI supports the joint statement on Hospital Exemption. The signatories of this statement are key stakeholders in the healthcare ecosystem at both the European Union and Member State level comprising of health care professionals’ associations, patient organisations...