Kick-off Meeting of the OrphaDev4Kids Patient Expert Committee (PEC)

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15th March (afternoon): Kick-off Meeting of the OrphaDev4Kids Patient Expert Committee (PEC)

Speakers

Emilia Biffi

Emilia Biffi obtained a PhD Degree cum laude in Bioengineering in 2012. Since 2013 she is a researcher at the Scientific Institute IRCCS E. Medea working in the Bioengineering Lab. She coordinates and is involved in several projects on new technologies for the rehabilitation and assistance of neuromotor and cognitive impairments of children. She has a long-standing experience in the on-field testing of medical devices and clinical trials involving high tech devices, such as robots, virtual reality and wearable sensors.
     

Aleksander Wiśniewski

Aleksander Wiśniewski is a paediatric intensive care nurse and expert in paediatric clinical research. He serves as the coordinator of the Young Persons Advisory Group (YPAG) “POLPEDNET Kids” at the Children’s Memorial Health Institute (IPCZD) in Warsaw, Poland His professional interests focus on integrating innovative technologies in paediatric care and promoting interdisciplinary cooperation in clinical trials. Additionally, he participates in European youth advisory networks, including iCAN, Teddy, and eYPAGNet.

Roberta Nossa

Roberta Nossa graduated cum laude in Biomedical Engineering at Politecnico di Milano and received her PhD with honors in Information Engineering at the University of Pisa. For the past three years, she has been a researcher in the Biorobotic Lab at IRCCS E. Medea – Associazione La Nostra Famiglia, where she has been involved in projects on new technologies for the rehabilitation and assistance of neuromotor and cognitive impairments in children. Additionally, she has served as the Technology Transfer Referent, responsible for collecting inventive proposals from researchers, guiding the organizational processes for inventive and patent activities and overseeing authorization practices for clinical investigations with medical devices.
   

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