EPTRI is pleased to invite you to an upcoming joint EPTRI–i~HD educational webinar – Unlocking the Potential of Real-World Health Data for Paediatric Clinical Research – to be held on 26th May 2026 (3.00 – 4.30 pm CEST) on Teams.
This webinar will explore how real-world health data—particularly data captured through Electronic Health Records (EHRs)—can improve the design and execution of paediatric clinical trials. Paediatric and rare disease studies often face significant challenges, including limited patient populations, complex recruitment processes, and operational burdens on families and clinical teams. During this session practical ways to address these barriers by responsibly reusing existing health data will be presented/discussed.
Confirmed speakers include leading experts in the field:
• Marek Migdał – European Paediatric Transnational Research Infrastructure (EPTRI) and Children’s Memorial Health Institute (CMHI)
• Dipak Kalra – The European Institute for Innovation through Health Data (i~HD)
• Mats Sundgren – The European Institute for Innovation through Health Data (i~HD)
• Peter Casteleyn – The European Institute for Innovation through Health Data (i~HD)
Patient perspective:
Valentina Jalby – patient representative, member of the TEDDY Kids Network and member of the Patient Expert Group (PEG) for the INVENTS Project
Karol Slowik – patient representative, member of the TEDDY Kids Network – POLPEDNET YPAG and of the Patient Expert Committee (PEC) of the OrphaDev4Kids Project.
Both will share valuable insights on the lived experience of participating in paediatric research.
The webinar, designed for a broad audience, including clinicians, researchers, patient organisations, policymakers, and data specialists, will be interactive with opportunity for the participants to contribute actively to the discussion.
You can register HERE.
More information on the event and speakers is available HERE.
We hope you will join us for this insightful session and contribute to shaping a more efficient and patient-centred future for paediatric clinical research.