NEWSLETTER JUNE 2020
Designing the framework for a new European paediatric research infrastructure
We have entered in the last month of this exciting journey that is the ID-EPTRI project, which allowed setting the basis for a new research infrastructure dedicated to paediatric research. This is not the end but just the beginning of a new phase in which we hope you all together will continue supporting the development of the European Paediatric Translational Research Infrastructure.
As many of you may know, EPTRI is finishing the Design Phase and is going to enter in the Preparatory Phase. To this aim, we submitted the EPTRI-IA application under the INFRAIA-02-2020 call for proposals. This marks an important step forward and will allow us to start delivering services to the paediatric research community and provide a blueprint to close the gap between innovative technologies and paediatric drug development processes, using an original scientific approach that is paediatric patients-centred.
We really believe that EPTRI can also make a very significant contribution in raising public awareness and enhancing the need of science for children’s health through developing impactful activities for the relevant stakeholders and the public.
The next step will be the application to include EPTRI within the ESFRI (European Strategic Forum on Research Infrastructures) Roadmap 2021, together with the finalisation of an inter-institutional and multilateral agreement, e.g. a Memorandum of Understanding (MoU) signed by all the research Institutions involved in the European Paediatric Translational Research Infrastructure development.
Now we need to join our efforts and continue working together to let EPTRI become soon a reality!
The EPTRI Partners
The EPTRI Partners at the kick-off meeting in Rome, January 2018
EPTRI at the ECRD 2020 meeting
On May 14th-15th over 1,500 people from 57 different countries, representing all stakeholder groups in the rare disease community, joined together at the 10th European Conference of Rare Diseases & Orphan Products — ECRD 2020.
The EPTRI toolkit for children, young patients and families is available online!
The EPTRI Work Package 11 partners elaborated a toolkit to educate children, young patients and families on basic and translational
The toolkit was designed incorporating the outcomes and conclusions obtained from the workshop with stakeholders and the roundtable with young people celebrated within the framework of the 3rd EPTRI General Assembly held in Madrid at the Ministry of Health, Consumption and Social Welfare on the 27th and 28th of March 2019.
EPTRI to attend EAPS 2020
A poster titled “EPTRI’s efforts to foster innovation in paediatric research” has been submitted to the 8th Congress of the European Academy of Paediatric Societies — EAPS 2020, which will be held in Barcelona (Spain) on 16th-20th October 2020.
This year’s EAPS 2020 theme is “Shaping the Future of Child Health”.
EPTRI Special Issue on Pharmaceutics
EVENTS OF INTEREST
June 22nd, 24th and 29th 2020, Online
The Research Infrastructure ImPact Assesment PaTHwayS project organises three online webinars tackling the theme “A European framework for socio-economic impact of research infrastructures: A way forward”. The webinars are addressed to research infrastructures, funding agencies, policy makers, impact analysts and other potential user communities.
EPTRI Stakeholders Roundtable
July 9th 2020, Online
This event will be a space to discuss possible ways of collaboration with other biomedical research infrastructures and European initiatives and networks relevant for paediatric research.
8th Congress of the European Academy of Paediatric Societies — EAPS 2020
October 16th-20th 2020, Barcelona, Spain
The conference goal is to promote and advance high-quality paediatric care and training worldwide to shape the future of children’s health. EAPS 2020 represents a renowned international event during which paediatricians and paediatric care professionals from around the world gain unparalleled access to the best scientific research and clinical care programmes available. EPTRI has submitted two abstracts to be presented on the congress.
Europe Biobank Week 2020
November 17-20th 2020, Online
This year’s edition will be celebrated online to avoid any concern that might arise on the context of the COVID-19 outbreak. Europe Biobank Week is an international event dedicated to relevant activities for biopreservation and biobanking of data and samples for research in order to decrease the burden of diseases and improve health care.
Core Technologies for Life Sciences 2021
September 14th-16th 2021, Lisbon, Portugal
CTLS2021 aims to address issues regarding the roles of core facilities in modern institutions, contributing to shape the future of the technical and scientific landscape of life sciences in Europe. Abstract submission deadline in June 21st 2021.